GRIN DISORDER CHILDREN
We, the parents of the GRIN children, joined together to pursue our goal - a complete recovery for our children.
We established an organization called GRIN DISORDER RESEARCH FOUNDATION (GDRF) whose sole purpose is to research and find a cure for our children. Our hope is gene therapy, which in simple words will allow us to replace the "malformed" gene in a normal gene in our children's brains. And that means healthy children with normal functioning!
We belong to the GRIN family. About 400 children worldwide carry a genetic mutation in one of the GRIN genes (GRIN1, GRIN2A, GRIN2B, GRIN2C, and GRIN2D). They all have severe developmental problems, acute epileptic activity and even seizures. Our charming children - they all have a big and captivating smile, but they cannot talk, walk or perform basic actions.
Unfortunately, medicine today is lacking.
There is no treatment that allows the abnormal mechanism in our children's brains to return to normal activity.
We decided not to accept the bitter decree and chose to do something.
We have already established partnerships with the world's leading research laboratories.
We have gathered specialist and researchers from different fields.
The human resource is available and onboard!
Now, we need the economic resource!
We reach you and ask for your help in this special journey that was forced upon us - Cure our children.
You are invited to visit our website www.gringn.com , which tells the stories of our GRIN children, describes the stages of the planned and on-going research and provides background on the syndrome.
Good health to all and May you will always be on the giving side.
The GRIN families.
by check payable to: KAVLACHAYIM-GRIN DISORDER CHILDREN
to: binyamin mintz 27 PETAH TIKVA
hapoalim bank, branch 532 count no 492218
For approval of tax deductible donation send us the form Transfer to a fax 03-9215566 and specify a name and shipping address